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Psychosocial Issues for People with Hemophiliaan excerpt from from Guidelines for the Management of Hemophilia (World Federation of Hemophilia, 2005) __________________________________________________ A person with hemophilia and his family need psychological and social support in coping with an illness that is chronic, often painful, and sometimes life-threatening. It is a financial burden and…

Bleeding and LivingBy Jared FormalejoI am Jared Formalejo. I'm the youngest of three boys in my family and out of the three of us, I'm the only one who has hemophilia. I'm the first person in my whole family's line to have this disorder. Doctors traced my whole family and only came up with one conclusion: my hemophilia resulted from a mutation in my genes.I was not diagnosed with this disorder until…

HAPLOS FOUNDATION, INC launches Art for Life - creating a brighter future, a fundraising project for its programs. The Hemophilia Association of the Philippines for Love and Service (HAPLOS Foundation, Inc) will be launching its fundraising project, entitled Art for Life through an art exhibit to take place from August 5 to 11, 2011 at the South Court of the Rockwell Power Plant Mall. The exhibit…

Taken from the World Federation of Hemophilia  As young boys with hemophilia grow up, not only do they experience the usual emotional and physical challenges of adolescence and early adulthood, but their relationships with family and caregivers also change when taking on more direct responsibility for their bleeding disorder. Hematologists who look after children will heavily involve parents…